Focal dystonia of the hand

Anyone out there have focal dystonia of their hands or fingers?

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Permalink Reply by Donna K on June 6, 2011 at 18:46

Maybe.  What is it??

Permalink Reply by JP on June 7, 2011 at 2:11

Involuntary muscle movements.  Mine is in my forefinger.  It curls in towards my palm.   Been reporting for 26 years.  Just wanted to see if any other reporter has experienced this.  Musicians are very prone to get it as well.

Permalink Reply by Linda Anderson on April 7, 2012 at 14:15

Hi, Jo Ann,

     I also developed focal dystonia in my left hand.  It has been a horrible ordeal.  I sometimes wonder if overuse caused it.  I thought I was the only one that developed it.  Could I ask how yours manifested itself?  Linda

Permalink Reply by Linda Anderson on April 8, 2012 at 8:05

Right now my wrist sometimes wants to draw up.  I remember when it started out

originally my ring finger on my left hand would draw into my palm.  It was like

a trigger finger almost.  I went to so many doctors.  They told me it was all in

my mind until I found this one doctor that told me exactly what it was.  Can you still

type?

Permalink Reply by Debbie on June 7, 2011 at 3:29

I don't have that, but I have either tendonitis or arthritis in my thumb and wrist.  One Doctor says it is arthritis and another said he saw no arthritis on xray.

 

 

Permalink Reply by Katharine on June 13, 2011 at 19:46
Hey Jackie, I suffer from focal dystonia, was diagnosed a couple of months ago, but had it since 2009.  I am a legal secretary so it affects me when typing.  My middle finger would automatically point forward, it is very frustrating. I had the botox injection last week and wish I hadn't, as it feels very stiff.
Permalink Reply by JP on June 14, 2011 at 1:50
I had several botox injections and none worked for me.  My left forefinger curls in.  I found a finger spring from Allegro Medical that helps when I'm typing.  They have springs that help fingers bend and springs that help fingers not to bend.
Permalink Reply by Janiece Young on June 14, 2011 at 3:52
Would some kind of physical therapy for you hands help?
Permalink Reply by Katharine on June 15, 2011 at 15:34

How long did it take for the botox to start wearing off?  I can't wait for it to wear off, as I am in a worse position than I was before the botox.

Permalink Reply by JP on June 15, 2011 at 17:08
About six months.
Permalink Reply by Linda Anderson on April 7, 2012 at 14:16

I will never use botox.  It was a nightmare.  I could not wait until the effects wore off.

Permalink Reply by Kelli Combs (admin) on June 14, 2011 at 9:08
Wow, very interesting.  I have never heard of it.  You learn something new every day.

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